The Kira Spedale Foundation

 Kira's Story and Treatment

The Kira Spedale Foundation will raise funds and awareness to combat DIPG (Diffuse Intrinsic Pontine Glioma), a rare, inoperable brainstem tumor that attacks children. Kira bravely fought against this brain tumor  for 17 months,  until the Lord took her life back to Heaven.  
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The Treatment Kira received for DIPG.

Oncologist  Stephen Lowis explains Kira's Treament.
The Youtube video link below explains Kira's treatment, by the team in Bristol, England led by Prof. Steven Gill. Kira had the most aggressive DIPG, but lived an impressive 17 months after  diagnosis, due to this treatment. Not only that, she lived well. She never had systemic chemo, and used steroids very little. She never lost her hair, or vomited. Her quality of life, because of this treatment, for what she had, was remarkable. If you are battling DIPG please watch the presentation which was given in Barcelona, Spain, by Kira's team. They talk of a female child, Kira, whose brain stem tumor responded very well to carboplatin. Don't worry sweet baby, we will help the others...good job, Kik's. I love you so much.
Psalm 23 
23 The Lord is my shepherd; I shall not want. He maketh me to lie down in green pastures: he leadeth me beside the still waters.
He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake. Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.
Learn about Kira's treatment

 Kira's Medical Family


Kira with members of her medical team (L-Fellow David Cronin, 
Kira and R-Professor Steven Gill)
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Leo Somerville with Kira

Leo Somerville with Kira

Celebrating Kira'sLife

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for the future.

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100% of all proceeds are used to fund research in searching for a cure for DIPG.  Kira Spedale Foundation is a 501-C-3.  All donations are tax deductible.

New Date for "KIKIPALOOZA"our OCTOBERFEST Fundraiser for kids with DIPG

We thank you for all support in our fundraising efforts. We are moving KIKIPALOOZA to Saturday, October 1st from 12pm-10:00pm. Join our OCTOBER FEST as we present live bands, food, carnival games, crafts and much more. Please save the date for our fundraising event to help kids with DIPG.
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Keep checking back for more details as the event draws near.

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